Navigating Both Roles: A Photovoice Exploration of the Young Adult Balancing Daughterhood and Caregiving for a Mother With Young-Onset Dementia
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View abstract on PubMed
Summary
This summary is machine-generated.Young adults caring for parents with young-onset dementia (YOD) face significant identity and emotional challenges. Tailored support is crucial for their well-being and personal growth.
Area Of Science
- Gerontology
- Psychology
- Sociology
Background
- Young adults caring for parents with young-onset dementia (YOD) experience unique challenges.
- Existing research lacks depth on identity shifts and psychological/societal impacts for these caregivers.
- This gap impedes effective social support, affecting caregiver well-being and development.
Purpose Of The Study
- To explore the experiences and identity redefinition of a young adult caregiver for a parent with YOD.
- To illuminate the profound impact of YOD caregiving on familial roles and relationships.
- To identify psychological and societal challenges faced by young caregivers.
Main Methods
- A single-case study design was employed.
- Utilized a combination of semi-structured interviews and photovoice.
- A 19-year-old caregiver (Alice) participated over 3 months, using photography to document experiences.
Main Results
- Four key themes emerged: adapting to an unexpected role, navigating grief and loss, prioritizing the healthy parent's well-being, and seeking support.
- Caregiving for a mother with YOD significantly redefined familial roles and relationships.
- Young caregivers face intricate identity and emotional challenges.
Conclusions
- Young adult caregivers of parents with YOD require specialized support.
- Family-centered systemic services are urgently needed to address their unique needs.
- Interventions should focus on identity, emotional well-being, and social support.
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