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A Decision Aid for Patients Considering Surgery for Sciatica: Codesign and User-Testing With Patients and Clinicians
Julie Ayre1, Richie Kumarage1, Hazel Jenkins2
1Sydney Health Literacy Lab, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
A new decision aid helps patients with sciatica understand surgery options. Developed with patient and clinician input, it empowers informed choices, though long-term surgical outcomes are similar to non-surgical management.
Area of Science:
- Health Informatics
- Patient Decision Making
- Surgical Outcomes Research
Background:
- Sciatica surgery offers faster initial recovery, but 12-month outcomes mirror non-surgical approaches.
- The decision for sciatica surgery requires careful consideration, highlighting the need for patient decision aids.
- Patient decision aids are evidence-based tools designed to support patients in complex medical choices.
Purpose of the Study:
- To develop and refine a patient decision aid for individuals with sciatica.
- To assist patients in choosing between surgical intervention and non-surgical management ('wait and see').
Main Methods:
- Semistructured interviews and think-aloud user-testing protocols were employed.
- The study involved 20 clinicians and 20 patients with sciatica or low back pain experience.
- Iterative refinement occurred over seven rounds of user-testing, incorporating feedback from clinicians and patients.
Main Results:
- The decision aid was rated highly by clinicians for usefulness (5.9/7) and ease of use (6.0/7).
- Patients demonstrated good understanding, answering 3.4/5 knowledge questions correctly, with a reading grade level of 9.0.
- Patients reported high preparation for decision-making (4.4/5), indicating empowerment and readiness for informed choices.
Conclusions:
- The developed decision aid is acceptable to clinicians and easy to understand for patients.
- Both patient and clinician feedback indicated the aid empowers patients to engage actively in their care.
- Collaborative development and user-testing were essential for creating a decision aid that meets user needs and promotes value-aligned decisions.
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