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Dementia-literate informal caregivers: An evolutionary concept analysis
Moroni Fernandez Cajavilca1, Tina Sadarangani1
1NYU Rory Meyers College of Nursing, New York, NY.
This study defines dementia literacy for informal caregivers as acquiring knowledge for decision-making, identifying care gaps, and accessing resources. It emphasizes proactive care and interdisciplinary collaboration for persons living with dementia (PLWD).
Area of Science:
- Gerontology
- Nursing Science
- Public Health
Background:
- Existing research lacks an evidence-based definition for dementia literacy.
- Informal caregivers play a crucial role in the long-term care of persons living with dementia (PLWD).
Purpose of the Study:
- To conceptualize dementia literacy among informal caregivers of PLWD in the United States.
- To establish an evidence-based definition of dementia literacy.
Main Methods:
- Utilized Rodger's evolutionary concept analysis method.
- Conducted a comprehensive literature search across four databases.
- Reviewed 22 relevant articles published between 2011 and 2023.
Main Results:
- Dementia literacy involves acquiring knowledge to inform care decisions.
- It includes identifying gaps in caregiving support and resource access.
- Maintaining relationships with specialized providers is integral.
Conclusions:
- Dementia literacy empowers caregivers to navigate long-term care effectively.
- The nursing profession should address cultural, linguistic, and bias factors.
- Promoting dementia literacy supports proactive and prepared informal caregivers for PLWD.
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