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Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low-Middle-Income Countries.
Aida Suárez-González1, Sharon A Savage2, Suvarna Alladi3
1Dementia Research Centre, UCL Queen Square Institute of Neurology, University College London (UCL), London WC1N 3BG, UK.
Rehabilitation services are crucial for dementia care, but scarce for young-onset dementia (YOD). This overview synthesizes therapies and models to guide the development of essential YOD rehabilitation programs.
Area of Science:
- Neurology
- Gerontology
- Rehabilitation Medicine
Background:
- The World Health Organization (WHO) Dementia Global Action Plan emphasizes the need for rehabilitation services to enhance health, reduce disability, and improve quality of life for individuals with dementia.
- Current rehabilitation services for dementia are limited, with a significant gap in provision for people experiencing young-onset dementia (YOD).
Purpose of the Study:
- To provide a comprehensive, three-part overview to stimulate the development of rehabilitation services tailored for young-onset dementia (YOD).
- To synthesize current evidence-based rehabilitative therapies for specific YOD types and explore practical service delivery models.
- To highlight the role of telehealth in expanding access to YOD rehabilitation.
Main Methods:
- A synthesis of existing knowledge on evidence-based rehabilitative therapies for early-onset Alzheimer's disease (EOAD), behavioral variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA).
- Discussion of the characteristics of rehabilitation services for YOD, including examples of integration into existing healthcare settings across three continents.
- Exploration of the multidisciplinary team's roles and the potential of telehealth in enhancing accessibility.
Main Results:
- Identification of evidence-based rehabilitative therapies applicable to various forms of young-onset dementia.
- Presentation of diverse models for embedding YOD rehabilitation services within current healthcare infrastructures.
- Demonstration of how telehealth can overcome geographical and logistical barriers to YOD rehabilitation.
Conclusions:
- There is a critical need to expand rehabilitation services for young-onset dementia (YOD).
- A multidisciplinary approach, incorporating evidence-based therapies and innovative service delivery models, is essential for effective YOD rehabilitation.
- Telehealth presents a promising avenue for increasing the accessibility and reach of YOD rehabilitation programs.
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