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A Dialogue about Vaccine Side Effects: Understanding Difficult Pandemic Experiences.

Mia-Marie Hammarlin1,2, Pia Dellson3,4

  • 1Department of Communication and Media, Lund University, Lund, Sweden. mia-marie.hammarlin@kom.lu.se.

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Distressing memories of swine flu vaccine-induced narcolepsy were triggered by the COVID-19 pandemic. This study explores these "cultural wounds" from mass vaccinations and pandemics, highlighting shared illness experiences.

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COVID-19dialoguenarcolepsyside effectsswine fluvaccine hesitancy

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Area of Science:

  • Sociology
  • Epidemiology
  • Psychology

Background:

  • Mass vaccinations during pandemics can lead to rare, severe adverse effects, such as narcolepsy following the 2009 swine flu vaccine in Sweden.
  • The COVID-19 pandemic re-activated distressing memories for individuals affected by previous vaccine-related health crises.
  • Societal difficulty in discussing traumatic health events creates "cultural wounds" impacting collective well-being.

Purpose of the Study:

  • To investigate the interrelationship between pandemics and mass vaccinations.
  • To explore the phenomenon of "cultural wounds" stemming from difficult-to-discuss adverse vaccine events.
  • To provide a platform for the narcolepsy illness narrative in academic discourse.

Main Methods:

  • Qualitative analysis of illness experiences.
  • Narrative inquiry through dialogue.
  • Exploration of societal memory and trauma related to mass vaccinations.

Main Results:

  • The COVID-19 pandemic triggered memories of swine flu vaccine-associated narcolepsy.
  • The study illuminates the under-documented illness narrative of narcolepsy.
  • Pandemics and mass vaccinations create interconnected "cultural wounds" due to communication difficulties.

Conclusions:

  • Understanding shared illness experiences and "cultural wounds" is crucial for navigating future pandemics.
  • Open dialogue about adverse vaccine events can mitigate societal trauma.
  • The study emphasizes the long-term psychological and social impact of mass vaccination campaigns.