Feasibility and Clinical Utility of Patient-Reported Outcome Measurement Information System-29 in a Newly Established Adolescent and Young Adult Oncology Program
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Summary
This summary is machine-generated.The Patient-Reported Outcome Measurement Information System (PROMIS)-29 survey is a feasible tool for adolescent and young adult (AYA) oncology programs to assess health-related quality of life (HRQOL). It identified key areas of need, enabling real-time care adjustments for AYA cancer patients.
Area Of Science
- Oncology
- Health Services Research
- Patient-Reported Outcomes
Background
- Adolescent and young adult (AYA) cancer patients face significant health-related quality of life (HRQOL) challenges despite survival improvements.
- AYA oncology programs seek effective assessment tools to identify and address patient needs.
- Existing tools may not fully capture the complex HRQOL issues in this demographic.
Purpose Of The Study
- To evaluate the feasibility and utility of the Patient-Reported Outcome Measurement Information System (PROMIS)-29 survey within an AYA oncology clinic.
- To determine the distribution and completion rates of the PROMIS-29 in an AYA oncology setting.
- To assess the impact of PROMIS-29 data on programmatic changes and real-time care delivery.
Main Methods
- AYA patients were referred to an AYA oncology program and administered the PROMIS-29 v2.0 survey at point of care.
- Survey feasibility, distribution, and completion rates were calculated.
- PROMIS-29 domains (physical function, anxiety, depression, fatigue, sleep, social roles, pain) were scored.
- Qualitative data on care delivery were collected at patient and program levels.
Main Results
- 134 AYA patients completed the survey between May 2017 and 2019.
- 100% distribution and completion rates were achieved for the PROMIS-29.
- Clinically relevant T-scores were observed for anxiety, fatigue, and physical function in the cohort.
- Program-level services were meaningfully adjusted based on PROMIS-29 score patterns.
Conclusions
- The PROMIS-29 is a feasible and effective tool for measuring clinically useful HRQOL outcomes in AYA oncology programs.
- Real-time data from PROMIS-29 enables timely care adjustments for newly diagnosed and in-treatment AYA cancer patients.
- Implementing PROMIS-29 facilitates data-driven programmatic improvements within AYA oncology care settings.
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