Related Experiment Video
Updated: Jun 22, 2025
14:43
A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
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Mind the gap: Comparing parents' information needs about impending preterm birth to current clinical practices using
Angela C M van Zijl1, Sylvia A Obermann-Borst2, Marije Hogeveen3
1Department of Neonatology, Wilhelmina Children's Hospital, Lundlaan 6, 3582 EA Utrecht, the Netherlands.
PEC Innovation
|July 4, 2024
Summary
Parents need information on participation in care, emotional wellbeing, success stories, and practicalities of very preterm birth. Current resources partially meet these needs, highlighting a gap in parental support.
Area of Science:
- Neonatal care
- Parental support
- Health communication
Background:
- Impending very preterm birth presents significant challenges for parents.
- Existing information provision may not fully align with parental needs.
- Understanding parental information requirements is crucial for effective support.
Purpose of the Study:
- To identify the information needs of parents facing impending very preterm birth.
- To compare these needs with current information practices in the Netherlands.
- To inform the development of a tailored parental information platform.
Main Methods:
- Surveyed 203 parents of preterm infants to assess information needs using inductive thematic analysis.
- Analyzed hospital (9 NICUs) and online information resources using deductive thematic analysis.
- Compared identified parental needs with available information resources.
Main Results:
- Parents seek information on participation in care, emotional wellbeing, success stories, and practical aspects of prematurity.
- Clinicians' communication skills and time are vital for optimal information delivery.
- Hospital resources primarily offer medical information, while parent associations focus on emotional support and experiences.
Conclusions:
- Parents have distinct information needs regarding very preterm birth.
- Current information resources partially fulfill these identified needs.
- There is a need for improved and tailored information provision for parents of preterm infants.
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