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Interactive Health Technology Tool for Kidney Living Donor Assessment to Standardize the Informed Consent Process:
Fernanda Ortiz1,2, Juulia Grasberger1,2, Agneta Ekstrand1,2
1Abdominal Center-Nephrology, Helsinki University Hospital, Helsinki, Finland.
JMIR Formative Research
|July 9, 2024
Summary
Interactive health technology improved informed consent for kidney living donors. The digital care path educated candidates on donation, aiding clinicians in standardizing the process.
Area of Science:
- Nephrology
- Transplantation
- Health Informatics
Background:
- Standardized information on nephrectomy risks and psychological impacts for kidney living donor candidates is lacking.
- Kidney living donation involves inherent risks for donors.
Purpose of the Study:
- To assess the benefit of interactive health technology in improving the informed consent process for kidney living donation.
- To evaluate the utility of a digital care path for kidney donor candidates.
Main Methods:
- Utilized the Kidney Hub portal and a patient-tailored digital care path (Living Donor Digital Care Path) for kidney living donation candidates.
- Assessed eHealth literacy (eHEALS), usability (SUS), and system utility via surveys.
- Conducted qualitative content analysis of open-ended feedback.
Main Results:
- The digital care path was technically satisfactory (mean SUS score 4.4) and useful for donation process education.
- eHealth literacy correlated with internet use for health decisions.
- Concerns identified by candidates focused on post-surgery coping.
Conclusions:
- Telemedicine effectively educates kidney living donor candidates on the donation process.
- The Living Donor Digital Care Path is a valuable eHealth tool for standardizing informed consent procedures.
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