Experiences of the Parents of Children Admitted to PICU

Sashisenla Kichu1, Poonam Joshi2, Sunidhi Bhandari3

  • 1Department of Hematology, All India Institute of Medical Sciences, Bhubaneswar, India.

Insights

Parents of children in the pediatric intensive care unit (PICU) experience unmet needs for information and support. Healthcare teams should proactively address parental distress and enhance coping mechanisms for better outcomes.

Area of Science:

  • Pediatric critical care medicine
  • Parental experiences in intensive care
  • Healthcare communication and support

Background:

  • Pediatric intensive care units (PICUs) are complex, high-stress environments for families.
  • Understanding parental experiences is crucial for improving care quality in PICUs.

Purpose of the Study:

  • To explore the lived experiences of parents whose children are admitted to a pediatric intensive care unit.
  • To identify unmet needs and challenges faced by parents in the PICU setting.

Main Methods:

  • A qualitative study involving in-depth interviews with 10 parents of children admitted to the PICU.
  • Inclusion criteria: children admitted for >5 days, parents understanding Hindi or English.
  • Exclusion criteria: readmission, prolonged stay >15 days, or absence of parents.

Main Results:

  • Parents reported significant unmet needs, including a lack of information, counseling, and education from the healthcare team (HCT).
  • Desire for a dedicated point of contact for queries and a trusting relationship with the HCT were highlighted.
  • Parents experienced distress, hopelessness, helplessness, guilt, and fear of child loss, employing various coping strategies.

Conclusions:

  • Critically ill children's parents in the PICU have substantial unmet needs.
  • Healthcare teams must proactively support parents, addressing their distress and enhancing coping abilities.
Abstract

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