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Experiences of the Parents of Children Admitted to PICU
Sashisenla Kichu1, Poonam Joshi2, Sunidhi Bhandari3
1Department of Hematology, All India Institute of Medical Sciences, Bhubaneswar, India.
Insights
Parents of children in the pediatric intensive care unit (PICU) experience unmet needs for information and support. Healthcare teams should proactively address parental distress and enhance coping mechanisms for better outcomes.
Area of Science:
- Pediatric critical care medicine
- Parental experiences in intensive care
- Healthcare communication and support
Background:
- Pediatric intensive care units (PICUs) are complex, high-stress environments for families.
- Understanding parental experiences is crucial for improving care quality in PICUs.
Purpose of the Study:
- To explore the lived experiences of parents whose children are admitted to a pediatric intensive care unit.
- To identify unmet needs and challenges faced by parents in the PICU setting.
Main Methods:
- A qualitative study involving in-depth interviews with 10 parents of children admitted to the PICU.
- Inclusion criteria: children admitted for >5 days, parents understanding Hindi or English.
- Exclusion criteria: readmission, prolonged stay >15 days, or absence of parents.
Main Results:
- Parents reported significant unmet needs, including a lack of information, counseling, and education from the healthcare team (HCT).
- Desire for a dedicated point of contact for queries and a trusting relationship with the HCT were highlighted.
- Parents experienced distress, hopelessness, helplessness, guilt, and fear of child loss, employing various coping strategies.
Conclusions:
- Critically ill children's parents in the PICU have substantial unmet needs.
- Healthcare teams must proactively support parents, addressing their distress and enhancing coping abilities.
Introduction:
A pediatric intensive care unit (PICU) is a highly technological and fast-paced setting in a hospital.
Objective:
To explore the experiences of the parents in the critical care area of a selected tertiary care facility.
Materials And Methods:
In a qualitative study, we interviewed 10 purposively selected parents of the children admitted to PICU using a pre-validated in-depth interview schedule. All parents, whose children were admitted to PICU for more than 5 days, who understood Hindi or English and were willing to participate in the study, were enrolled in the study. Parents of critically ill children having readmission to PICU or prolonged stay of more than 15 days and not accompanied by parents were excluded.
Results:
Parents had unmet needs, such as the need for information, counseling and education from the healthcare team (HCT) members, having trusting relationship with the HCT, and expecting receiving orientation of the routines and the protocols of PICU, and empathy from the various levels of PICU team. The majority of subjects expressed the desire to talk to a dedicated person for their queries. The parents had multiple feelings of distress, hopelessness, helplessness, guilt, and the fear of losing the child and used various coping strategies.
Conclusion:
Parents of critically ill children in the PICU have unmet needs. Healthcare team members should take initiative in relieving parental distress and improving their coping abilities.
How To Cite This Article:
Kichu S, Joshi P, Bhandari S, Lodha R, Jaykrishnan K. Experiences of the Parents of Children Admitted to PICU. Indian J Crit Care Med 2024;28(7):696-701.
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