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Long-term follow-up in pediatric intensive care-a narrative review
Ashfaque Quadir1,2, Marino Festa1, Michelle Gilchrist1
1Paediatric Intensive Care Unit, The Children's Hospital at Westmead, Sydney, NSW, Australia.
Insights
More children survive pediatric intensive care, but many face long-term challenges. This review examines pediatric post-intensive care syndrome and the need for standardized follow-up programs for improved survivorship outcomes.
Area of Science:
- Pediatric critical care medicine
- Intensive care unit (ICU) survivorship
- Long-term health outcomes in children
Background:
- Pediatric intensive care has advanced, leading to improved survival rates for critically ill children.
- Increased survival in pediatric intensive care units (PICUs) results in a growing population of survivors with potential long-term consequences.
- Existing literature documents physical, psychosocial, and cognitive impairments in these children, highlighting the need for structured follow-up.
Purpose of the Study:
- To explore pediatric post-intensive care syndrome (PICS).
- To summarize multifactorial deficits and morbidity in children after PICU discharge.
- To review current long-term follow-up practices and identify research gaps.
Main Methods:
- This study is a narrative review of existing literature.
- It synthesizes information on pediatric post-intensive care syndrome.
- It examines current practices and future research directions in PICU follow-up.
Main Results:
- Survivors of pediatric intensive care often experience significant long-term functional impairments (physical, psychosocial, cognitive).
- There is a lack of standardized, evidence-based approaches for long-term follow-up care for pediatric ICU survivors.
- Current follow-up practices are inconsistent and require further research and development.
Conclusions:
- Pediatric post-intensive care syndrome presents a complex challenge with multifactorial deficits.
- Establishing standardized, evidence-based follow-up programs is crucial for optimizing long-term outcomes for pediatric ICU survivors.
- Further research is needed to address gaps in understanding and develop effective long-term care strategies.
Abstract:
Pediatric intensive care is a rapidly developing medical specialty and with evolving understanding of pediatric pathophysiology and advances in technology, most children in the developed world are now surviving to intensive care and hospital discharge. As mortality rates for children with critical illness continue to improve, increasing PICU survivorship is resulting in significant long-term consequences of intensive care in these vulnerable patients. Although impairments in physical, psychosocial and cognitive function are well documented in the literature and the importance of establishing follow-up programs is acknowledged, no standardized or evidence-based approach to long-term follow-up in the PICU exists. This narrative review explores pediatric post-intensive care syndrome and summarizes the multifactorial deficits and morbidity that can occur in these patients following recovery from critical illness and subsequent discharge from hospital. Current practices around long-term follow-up are explored with discussion focusing on gaps in research and understanding with suggested ways forward and future directions.
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