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Updated: Jun 20, 2025
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A web-based knowledge database to provide evidence-based information to cancer patients: Utilization within the PIKKO
Nico Schneider1, Uwe Altmann2,3, Florian Brandt4
1Institute of Psychosocial Medicine, Psychotherapy and Psychooncology (IPMPP), Jena University Hospital, Stoystrasse 3, 07740, Jena, Germany. nico.schneider@med.uni-jena.de.
Summary
A web-based knowledge database (WDB) effectively provided cancer patients and navigators with reliable information, improving health literacy and informed decision-making. The WDB demonstrated significant patient engagement and satisfaction with its accessible, evidence-based content.
Area of Science:
- Oncology
- Health Informatics
- Patient Education
Background:
- Cancer patients require understandable, reliable online information, often unmet by current resources.
- The PIKKO project developed a web-based knowledge database (WDB) to address this information gap.
- The WDB offers quality-assured, evidence-based information for cancer patients.
Purpose of the Study:
- To analyze the usage patterns (who, how, what) of the WDB.
- To evaluate the impact of the WDB on users' health literacy.
- To compare usage and effects between patients and patient navigators (PNs).
Main Methods:
- Evaluation of automatically generated logfile data.
- Analysis of a patient survey.
- Comparison of two user groups: patients and patient navigators (PNs).
Main Results:
- Patient navigators (PNs) accounted for one-third of all accesses.
- Patients (n=413) used the WDB twice on average, spending 12 minutes per session.
- Top patient interests: therapy, nutrition, carcinogenesis; PNs: therapy, naturopathy, legal support. 90% found WDB appropriate.
Conclusions:
- The WDB successfully delivered crucial cancer information digitally to patients and PNs.
- The WDB has the potential to enhance health literacy and support informed decision-making in routine cancer care.
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