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Time to be seen and heard: Including children's and adolescents' voices in the South African TB response
C Goslett1, K Du Preez2, G Hendricks3
1Desmond Tutu TB Centre, Department of Paediatrics and Child Health, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa. cgoslett@sun.ac.za.
Insights
Childhood tuberculosis (TB) in South Africa presents unique challenges, particularly regarding child-friendly treatments and support. Including children
Area of Science:
- Pediatrics
- Infectious Diseases
- Public Health
Background:
- Children are highly susceptible to tuberculosis (TB) and severe disseminated forms like TB meningitis.
- Diagnosis and treatment of childhood TB in South Africa (SA) face significant hurdles, including non-pediatric-friendly adult formulations.
- The specific needs of children with TB are often overlooked in public health responses.
Purpose of the Study:
- To highlight the challenges in diagnosing and treating childhood tuberculosis in South Africa.
- To emphasize the need for child-friendly TB medication, vaccines, and educational support.
- To advocate for the inclusion of children's voices in TB response strategies.
Main Methods:
- Qualitative analysis of challenges based on personal accounts and existing literature.
- Review of current practices in pediatric TB management in South Africa.
- Identification of gaps in child-specific TB care and support.
Main Results:
- Existing TB treatments for children in SA involve breaking adult tablets, which are unpalatable and difficult to administer.
- Delays exist in developing and accessing child-friendly TB medications and vaccine availability.
- Educational support for hospitalized children under school-going age is lacking.
Conclusions:
- Including children's perspectives is crucial for an effective TB response in SA.
- Progress includes a pediatric working group and contributions to research, but further steps are needed.
- Integrating child TB activists' feedback into policy and monitoring can improve care.
Abstract:
Ciara Goslett's account of childhood tuberculosis (TB) sheds light on the challenges faced by children diagnosed with TB in South Africa (SA). Children are particularly vulnerable to TB infection and to dangerous forms of disseminated TB such as TB meningitis, which can cause death or major lifelong disability. They have distinct challenges with diagnosis, and TB treatment for adults is not necessarily child- friendly. In the absence of a child-friendly formulation, adult tablets are broken into the correct dosage and used to treat children. Crushed and dissolved in water, the pieces are not very palatable for children. There are therefore issues that may be neglected if the voices of children are not included in the TB response in SA. These include delays in the development and accessibility of child-friendly medication, vaccine shortages and a lack of educational support for hospitalised children under school-going age. Some positive progress has been made through the establishment of the paediatric working group in the TB Think Tank, and SA's contribution to pivotal childhood TB research studies. Additional steps could be the inclusion of children's feedback in community-led monitoring efforts and engagement between child TB activists and the SA TB Caucus, a collective of parliamentarians.
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