Hjernetegn.dk-The Danish Central Nervous System Tumor Awareness Initiative Digital Decision Support Tool: Design and...

Area of Science:

• Pediatric Oncology
• Digital Health
• Diagnostic Decision Support

Background:

• Childhood central nervous system (CNS) tumors face significant diagnostic delays due to vague symptoms and varying healthcare professional (HCP) awareness.
• The hjernetegn.dk initiative was launched in Denmark to address this challenge by increasing HCP awareness of clinical presentations.

Purpose of the Study:

• To detail the design and implementation of a decision support tool aimed at reducing diagnostic delays for childhood CNS tumors.
• To outline strategies for dissemination and social media engagement.
• To evaluate the digital impact of the tool 6 months post-launch.

Main Methods:

• Development involved participatory co-creation workshops with stakeholders.
• Website and digital platforms were designed for HCPs.
• A press and media strategy, including social media and Google Search, was implemented for dissemination.
• Website analytics and social media engagement data were used for evaluation.

Main Results:

• The hjernetegn.dk initiative exceeded key performance indicators within 6 months of launch.
• High website visitor numbers and engagement were observed, stabilizing 3 months post-launch.
• The LinkedIn campaign and Google Search strategy achieved substantial impressions and clicks.

Conclusions:

• The digital support tool has been successfully integrated, enhancing awareness and aiding HCPs in diagnosing childhood CNS tumors.
• Interdisciplinary collaboration, co-creation, and community management are crucial for successful digital tool implementation.
• Broad dissemination strategies are vital for maximizing the impact of such initiatives.