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Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach.

Nikolaos Efstathiou1,2, Ping Guo1, Wendy Walker3

  • 1University of Birmingham, College of Medical and Dental Sciences, Institute of Clinical Sciences, School of Nursing and Midwifery, Birmingham, UK.

Journal of Palliative Care
|July 26, 2024
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Summary
This summary is machine-generated.

Identifying palliative and end-of-life care research priorities in the West Midlands revealed that integrated care systems and equity are key areas needing attention. These findings highlight persistent challenges in palliative care delivery across regions.

Keywords:
Delphi techniqueend-of-life carepalliative careresearch priorities

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Area of Science:

  • Palliative Care Research
  • Health Services Research
  • End-of-Life Care

Background:

  • Establishing research priorities is crucial for advancing palliative and end-of-life care by addressing evidence gaps.
  • This study focused on identifying and prioritizing research needs within the West Midlands region of the UK.

Purpose of the Study:

  • To identify and prioritize key research areas in palliative and end-of-life care specific to the West Midlands.
  • To ensure future research efforts are aligned with the most pressing needs in the region.

Main Methods:

  • A modified Delphi technique involving palliative care stakeholders was employed.
  • Methods included rapid interviews for item generation, content analysis, an online survey for priority rating (Likert scale), and a final ranking round.

Main Results:

  • 158 research items across 15 categories were generated from 56 interviews.
  • Seven consensus items were ranked by 45 stakeholders, with 'Integrated care systems to prevent crisis' and 'equity' in palliative care emerging as top priorities.

Conclusions:

  • The identified research priorities for the West Midlands align with those from other regions, indicating persistent issues.
  • Unresolved challenges in palliative and end-of-life care, particularly concerning integration and equity, require continued focus and research efforts.