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Transition to Adulthood in Pediatric Palliative Care: A Narrative Review
Franca Benini1, Laura Brogelli2, Anna Mercante3
1Pediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University of Padua, 35122 Padua, Italy.
Insights
Pediatric palliative care (PPC) supports children with life-limiting illnesses and their families. This review explores optimizing the transition from pediatric to adult palliative care services for long-term patient well-being.
Area of Science:
- Palliative Care
- Pediatric Healthcare
- Transition Medicine
Background:
- Pediatric palliative care (PPC) is crucial for children with life-limiting or life-threatening diseases, extending support to families.
- PPC is initiated upon diagnosis and can continue for many years due to advancements in care.
- As children mature, transitioning to adult healthcare services becomes essential.
Purpose of the Study:
- To discuss interventions for an efficient transition from pediatric to adult palliative care.
- To review existing issues, experiences, and programs related to this transition.
- To offer author perspectives and proposals for improved transition processes.
Main Methods:
- A narrative review of literature on pediatric to adult palliative care transition.
- Analysis of issues, experiences, and existing programs.
- Inclusion of a "Perspectives" section for expert opinions.
Main Results:
- The transition is a developmental process, not just a service change.
- Interdisciplinary management, planning, and collaboration are vital.
- Current programs and experiences highlight areas for improvement.
Conclusions:
- Efficient transition requires a holistic, developmental approach.
- Collaboration between pediatric and adult care teams is paramount.
- Proactive planning ensures continuity of quality palliative care for young adults.
Abstract:
Pediatric palliative care (PPC) is defined as "the active care of the child's body, quality of life, mind and spirit, also giving support to the family". PPC should be established once a diagnosis of life-limiting or life-threatening disease is reached and should continue as long as necessary. Therefore, pediatric palliative care (PPC) can continue for years, also given the improved care approaches for children with life-limiting or life-threatening diseases. Over time, the child may grow to become a young adult, and when this happens, the transition to adult healthcare services must be undertaken. This article discusses possible interventions, fostering an efficient transition from pediatric to adult palliative care. A narrative review presents issues, experiences, and existing programs. A "Perspectives" section presents opinions and proposals by the authors. The transition process is not limited to a change from pediatric to adult services. Rather, it includes the entire process of the development of the child and requires interdisciplinary management with proper planning and collaboration among professionals of pediatric and adult teams.
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