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Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A
Zanab Mian1, Terrence Calistro2, Kimberly Rapoza2
1Department of Pediatrics, Donald and Barbara Zucker School of Medicine at Hofstra-Northwell, Hempstead, NY; Division of Pediatric Rheumatology, Cohen Children's Medical Center of NY, New Hyde Park, NY.
Abstract:
Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.
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