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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
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A Multinational, Multicenter Study Mapping Models of Kidney Supportive Care Practice.

Seren Marsh1, Amanda Varghese2, Charlotte M Snead1

  • 1Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.

Kidney International Reports
|July 31, 2024
PubMed
Summary
This summary is machine-generated.

Kidney supportive care (KSC) models vary significantly across different countries and units, despite consistent person-centered priorities. Further research and improved funding are needed for sustainable KSC delivery.

Keywords:
chronic kidney diseasekidney failurekidney supportive caremodels of carepalliative carequality of life

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Area of Science:

  • Nephrology
  • Palliative Care
  • Health Services Research

Background:

  • Kidney supportive care (KSC) integrates kidney and palliative care to enhance quality of life for individuals with chronic kidney disease (CKD).
  • There is growing global interest in KSC, but limited evidence exists to guide its optimal delivery.
  • Understanding current KSC models is crucial for improving care standards.

Purpose of the Study:

  • To describe the current models of Kidney Supportive Care (KSC) services in Australia, Aotearoa-New Zealand, and the United Kingdom.
  • To identify variations and consistencies in KSC delivery across these regions.
  • To highlight areas for improvement in KSC provision.

Main Methods:

  • An observational, cross-sectional study design was employed.
  • An online survey was distributed to nephrology units in Australia, Aotearoa-New Zealand, and the UK.
  • Data were collected between April and December 2022 from 114 responding units (67% response rate).

Main Results:

  • 66% of responding units had a dedicated KSC service, with variations in implementation across countries (UK 74%, Australia 58%, NZ 67%).
  • KSC services featured diverse healthcare professionals, resources, and activities, with significant variations noted within and between countries.
  • Funding for KSC services was generally low (median 0.51 FTE per 100 hemodialysis patients), with some units operating without dedicated funding.
  • Prioritized KSC activities included symptom management, psychological support, future treatment planning, and care coordination.

Conclusions:

  • Models of KSC exhibit considerable variation across kidney units and countries.
  • Despite structural differences, KSC consistently prioritizes person-centered care focused on physical and psychosocial well-being.
  • Further research is essential to evaluate KSC effectiveness and develop sustainable funding models for equitable delivery.