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Related Experiment Video

Updated: Jun 18, 2025

Collecting Sleep, Circadian, Fatigue, and Performance Data in Complex Operational Environments
08:36

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Client Perceptions of the Individual Packer Managing Fatigue Program: A Mixed-Method Evaluation.

Neda Alizadeh1, Tanya L Packer1,2, Sabrena Jaswal1

  • 1Dalhousie University, Halifax, Nova Scotia, Canada.

OTJR : Occupation, Participation and Health
|August 1, 2024
PubMed
Summary
This summary is machine-generated.

The Packer Managing Fatigue program is helpful for Parkinson's disease (PD) patients, with online delivery being feasible. Patients found the program beneficial and suggest improvements for future implementation.

Keywords:
Parkinson’s diseaseinterventionmixed methodsoccupational performanceoccupational therapy

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Area of Science:

  • Neurology
  • Rehabilitation Science
  • Psychology

Background:

  • Fatigue is a prevalent yet under-recognized symptom in Parkinson's disease (PD).
  • Limited effective treatment options currently exist for managing fatigue in PD.
  • Understanding patient experiences is crucial for developing effective interventions.

Purpose of the Study:

  • To explore the experiences of people with Parkinson's disease (PwPD) regarding the content and delivery of the individual Packer Managing Fatigue program.
  • To assess the feasibility and perceived helpfulness of an online fatigue management program for PwPD.

Main Methods:

  • A mixed-method study involving 12 participants was conducted alongside a pilot randomized controlled trial.
  • Data collection utilized questionnaires, interviews, and focus groups to gather comprehensive feedback.
  • Qualitative themes and quantitative feasibility data were analyzed.

Main Results:

  • Five key themes emerged: the program is helpful, possesses strengths, has areas for improvement, online delivery is feasible, and increased occupational therapist support is desired.
  • Quantitative data confirmed high participant ratings and confidence in using learned fatigue management strategies.
  • The findings highlight the potential of the Packer Managing Fatigue program.

Conclusions:

  • The Packer Managing Fatigue program is perceived as beneficial by PwPD.
  • Individual online delivery of fatigue management programs is feasible for PwPD.
  • Future research should explore the program's effectiveness and consider tailored approaches and enhanced occupational therapist support.