Spina bifida transition care in India: strengths amidst challenges
Suhas Udayakumaran1, Vijayasekhar V Manda2, Shweta Kedia3
11Division of Paediatric Neurosurgery and Craniofacial Surgery, Amrita Institute of Medical Sciences and Research Centre, Kochi, Kerala.
Insights
India
Area of Science:
- Neurosurgery
- Pediatric Care
- Healthcare Systems
Background:
- Dedicated pediatric neurosurgery is underdeveloped in India.
- Adult and pediatric neurosurgeons often treat patients of all ages.
- Lifelong care for conditions like spina bifida (SB) lacks structured programs.
Purpose of the Study:
- To explore innovative strategies for improving neurosurgical care transition in India.
- To address the challenges in managing lifelong conditions like spina bifida.
- To propose technology-based solutions for seamless patient care.
Main Methods:
- Analyzing the current neurosurgical care system in India.
- Evaluating the potential of technology-based education and telemedicine.
- Considering a coordinated, multidisciplinary approach for patient transition.
Main Results:
- Current systems present challenges for formal specialty transitions.
- Technology, including telemedicine and smartphones, offers a pragmatic approach.
- Virtual consultations can facilitate multispecialty care and education, overcoming logistical barriers.
Conclusions:
- A coordinated system with technology integration can improve neurosurgical care transition for lifelong conditions.
- Telemedicine can provide accessible, multispecialty support for spina bifida patients in India.
- India's unique neurosurgical landscape may offer a novel model for global transition care.
Abstract:
In India, adult neurosurgeons are required to care for children regularly because the concept of dedicated pediatric specialty care is not yet entirely established in the subcontinent. Likewise, pediatric neurosurgeons do not exclusively offer their services to the young, but they also provide care to adult patients with neurosurgical disorders. This creates a medical system where the transition between specialties is not often a formal and recognized aspect of neurosurgical care because most neurosurgeons provide care for patients of all ages. Additionally, there are very few teams geared toward caring for conditions in children that merit lifelong medical support, with spina bifida (SB) being one of them. Since there are no focused or structured pediatric programs on a large scale, developing a multidisciplinary clinic for adults becomes challenging. A pragmatic approach using technology-based education, supported by an organized system or a coordinator, may be a new strategy. A new system utilizing telemedicine and smartphones for established patients maybe an alternative option for SB children in India. During virtual video conferences, an established patient may benefit from multispecialty care and education toward a smooth transition that avoids significant issues with time, transportation, or financial constraints. Achieving a seamless transition among allied specialists from the pediatric to adult systems is a utopia. The current system in the subcontinent may be improved, with an opportunity to develop smooth transition care between coordinated specialists (who simultaneously treat children and adults). Learning from various global SB management styles, the Indian transition situation may offer another model in the near future.
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