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Developing research priorities for palliative care in Colombia: a priority setting partnership approach
Tracey McConnell1,2, Cindy V Mendieta3,4, Esther de Vries3
1Marie Curie Hospice Belfast, Belfast, UK. t.mcconnell@qub.ac.uk.
BMC Palliative Care
|August 1, 2024
Summary
Research priorities in palliative care for Colombia were identified through a stakeholder partnership. Patient and caregiver needs, education, and service integration emerged as key areas for future research to improve care in low- and middle-income countries.
Area of Science:
- Global Health
- Health Services Research
- Palliative Care
Background:
- Palliative care research is needed in low- and middle-income countries (LMICs) like Colombia.
- A structured approach involving diverse stakeholders is recommended to set research priorities.
Purpose of the Study:
- To establish research priorities for palliative care in Colombia.
- To involve non-research expert stakeholders in identifying service user needs.
Main Methods:
- A Priority Setting Partnership (PSP) using the James Lind Alliance methodology.
- Four stages: partnership establishment, evidence uncertainty identification, question refinement, and prioritization.
- Descriptive statistics were used to analyze data from Mentimeter exercises and forms.
Main Results:
- 33 stakeholders attended an online workshop, and 48 participated in in-person prioritization events in Bogota and Popayan.
- Diverse stakeholders included health professionals, administrative staff, patients, and caregivers.
- Top priorities: patient/caregiver needs, provider education, integrating palliative care with cancer/non-cancer services. Challenges: lack of interest, funding, time. Solutions: collaboration, highlighting benefits, multicenter research with patient involvement.
Conclusions:
- Disseminate findings globally to inform international studies and Colombian research organizations.
- Prioritize patient and family caregiver palliative care needs in Colombia.
Keywords:
Consensus methodsNominal group techniquePalliative carePriority setting partnershipResearch prioritiesMore Related Videos
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