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The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric performance
Matilda Bräutigam1,2, Kate Abrahamsson1,2, Vladimir Gatzinsky1,2
1Department of Paediatric Surgery, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
Insights
The Swedish Paediatric Quality of Life Inventory (PedsQL) gastrointestinal symptoms scale is now validated for children. This tool effectively measures symptoms and quality of life in pediatric gastrointestinal disorders.
Area of Science:
- Pediatric Gastroenterology
- Health Outcomes Research
- Psychometrics
Background:
- No validated symptom scale exists for Swedish children with gastrointestinal disorders.
- Accurate measurement tools are crucial for assessing pediatric gastrointestinal conditions.
Purpose of the Study:
- To validate the Swedish version of the Paediatric Quality of Life Inventory (PedsQL) gastrointestinal symptoms scale and module.
- To establish the psychometric properties of the PedsQL in a Swedish pediatric population.
Main Methods:
- Recruitment of 115 children with gastrointestinal disorders and 149 parents from two Swedish hospitals.
- Administration of the PedsQL gastrointestinal symptoms scale, symptoms module, and generic core scale.
- Analysis of feasibility, construct validity, internal consistency, re-test reliability, and child-parent agreement.
Main Results:
- High feasibility with a response failure rate of ≤5%.
- Strong construct validity and known-group validity aligned with disease characteristics (p<0.05).
- Excellent internal reliability (Cronbach's alpha=0.96) and good child-parent agreement (ICC=0.74).
Conclusions:
- The Swedish PedsQL Gastrointestinal Symptoms Scales demonstrate acceptable measurement properties.
- The validated scale can be utilized in clinical practice and research for evaluating pediatric gastrointestinal symptoms and quality of life.
Aim:
There is no validated symptom scale for Swedish children with gastrointestinal disorders. Our aim was to validate the Swedish version of the Paediatric Quality of Life Inventory (PedsQL) gastrointestinal symptoms scale and symptoms module.
Methods:
Families were recruited from two hospitals in Gothenburg, Sweden, from 1 March 2021 to 31 October 2022. The instruments were completed by 115 children with functional, congenital or organic acquired gastrointestinal disorders and 149 of their parents. These were the gastrointestinal symptoms scales, symptoms module and the 4.0 Generic core scale. Data were analysed for feasibility, construct validity and reliability, including internal consistency, re-test reliability and child-parent agreement.
Results:
Feasibility was good, with a failure to respond of ≤5%. Construct validity showed strong correlation in the PedsQL gastrointestinal symptoms module. The known-group validity agreed with the expectations associated with the disease characteristics (p < 0.05). Cronbach's alpha was 0.96, which indicated excellent internal reliability. The intraclass correlation coefficient for the child self-report and parent-proxy report was 0.74, which indicated good agreement.
Conclusion:
The Swedish PedsQL Gastrointestinal Symptoms Scales, the symptoms module provided acceptable measurement properties and can be used to evaluate symptoms of gastrointestinal disorders and quality of life during clinical work or research projects.
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