Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Intellectual Disability01:29

Intellectual Disability

48
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
48
Standards of Care II01:19

Standards of Care II

638
Nurses bear specific legal responsibilities under several federal statutes, including:
638
International Nursing Organizations I01:23

International Nursing Organizations I

1.6K
International Nursing Organization (ICN) is a global union of national nurses' organizations. Individual nurses can be a part of ICN through member organizations. Each member organization strives to ensure quality nursing care, sound health policies, the advancement of nursing knowledge, respect for the profession, and a satisfied and competent nursing workforce.
ICN member organizations work to advance the field of nursing and healthcare via policies, partnerships, lobbying, professional...
1.6K
Specialized Care Centers and Settings-II01:30

Specialized Care Centers and Settings-II

721
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
721
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

876
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
876
Health Information Technology and Healthcare Information System01:30

Health Information Technology and Healthcare Information System

812
Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
812

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Perceived community-based needs of low-income parents with psychiatric disabilities who experienced legal challenges to their parenting rights.

Children and youth services review·2026
Same author

Digital health tools and point solutions-pitfalls in population health program measurement.

Frontiers in digital health·2026
Same author

Assessing income heterogeneity of female sex as risk factor for long COVID: a meta-analytic investigation.

Biodemography and social biology·2026
Same author

Rare Invasive Fusarium Sinusitis in a Transiently Immunosuppressed Patient.

Cureus·2026
Same author

Fall-Related Emergency Department Visits Among Adults With and Without Intellectual and Developmental Disabilities or Cerebral Palsy.

Annals of family medicine·2026
Same author

Beyond translation: a patient-centered research agenda for artificial intelligence interpreter services in healthcare.

NPJ digital medicine·2026

Related Experiment Video

Updated: Jun 18, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

3.7K

Advancing Health Policy and Outcomes for People With Intellectual or Developmental Disabilities: A Community-Led

Hoangmai H Pham1, Teal W Benevides2, May-Lynn Andresen1

  • 1Institute for Exceptional Care, Washington, DC.

JAMA Health Forum
|August 2, 2024
PubMed
Summary

Millions with intellectual and/or developmental disabilities (IDD) face health disparities. A community-led consensus proposes national health goals and policy solutions to improve outcomes for people with IDD and their caregivers.

More Related Videos

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools
11:29

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Published on: June 20, 2020

9.1K
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.6K

Related Experiment Videos

Last Updated: Jun 18, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

3.7K
Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools
11:29

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Published on: June 20, 2020

9.1K
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.6K

Area of Science:

  • Health equity for vulnerable populations
  • Public health policy and advocacy
  • Disability studies and inclusive healthcare

Background:

  • Over 10 million individuals in the US have intellectual and/or developmental disabilities (IDD).
  • People with IDD experience significantly higher rates of chronic conditions, mental health challenges, and preventable deaths.
  • Existing healthcare systems often fail to meet the holistic health needs of people with IDD and their caregivers.

Purpose of the Study:

  • To propose national health goals for people with IDD based on a community-led consensus model.
  • To identify critical policy opportunities and challenges in achieving these goals.
  • To advance priority health outcomes for people with IDD and their caregivers/partners.

Main Methods:

  • A community-led consensus model was employed to identify priority health outcomes.
  • Analysis of policy opportunities and challenges related to healthcare access and quality for people with IDD.
  • Incorporation of lived experiences and perspectives from community members and caregivers.

Main Results:

  • A consensus agenda focusing on research, data collection, quality measurement, and workforce preparedness.
  • Identification of needs for tailored supports, services, and caregiver well-being.
  • Emphasis on policy changes to incentivize training, improve coverage, and enhance data infrastructure.

Conclusions:

  • Community-centered health priorities for people with IDD are generalizable to other patient populations.
  • Opportunity for payers and regulators to promote person-centered data collection and quality measurement.
  • Need for innovation in healthcare workforce development and data infrastructure to support value-based care.