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Related Experiment Video

Updated: Jun 18, 2025

Adapted Resistance Training Improves Strength in Eight Weeks in Individuals with Multiple Sclerosis
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Using the Knowledge to Action framework to improve housing and support for people with Multiple Sclerosis.

Lee Cubis1, Sharyn McDonald2, Pamela Dean3

  • 1Living with Disability Research Centre, La Trobe University, Melbourne, Vic, Australia; and Summer Foundation, Melbourne, Vic, Australia.

Brain Impairment : a Multidisciplinary Journal of the Australian Society for the Study of Brain Impairment
|August 2, 2024
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Summary

People with Multiple Sclerosis (MS) require significant home modifications and over 8 hours of daily support. Individualized housing and responsive funding are crucial for independence and community integration.

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Area of Science:

  • Rehabilitation Medicine
  • Disability Studies
  • Public Health Policy

Background:

  • Multiple Sclerosis (MS) presents unique challenges to independent living.
  • Limited research exists on optimal community living options for individuals with MS.
  • Understanding housing and support needs is vital for developing effective interventions.

Purpose of the Study:

  • To examine the housing and support needs and preferences of people with MS.
  • To inform the planning of a co-designed intervention for improved living outcomes.
  • To adapt findings to the Australian context.

Main Methods:

  • Utilized the Knowledge to Action (KTA) framework.
  • Integrated quantitative (n=79) and qualitative (n=6) data from existing projects.
  • Synthesized findings and validated with a reference group.

Main Results:

  • High physical support needs were prevalent, including home modifications and assistive technology.
  • Many individuals required over 8 hours of daily paid support.
  • Individualized housing promoted independence and community reintegration, though gaps in support provision were identified.

Conclusions:

  • People with MS necessitate proactive and responsive funding, housing design, and support services.
  • Findings will guide a co-designed intervention involving people with lived experience.
  • The intervention aims to influence policy and enhance home and living outcomes for the MS population.