Using the Knowledge to Action framework to improve housing and support for people with Multiple Sclerosis

Area of Science:

• Rehabilitation Medicine
• Disability Studies
• Public Health Policy

Background:

• Multiple Sclerosis (MS) presents unique challenges to independent living.
• Limited research exists on optimal community living options for individuals with MS.
• Understanding housing and support needs is vital for developing effective interventions.

Purpose of the Study:

• To examine the housing and support needs and preferences of people with MS.
• To inform the planning of a co-designed intervention for improved living outcomes.
• To adapt findings to the Australian context.

Main Methods:

• Utilized the Knowledge to Action (KTA) framework.
• Integrated quantitative (n=79) and qualitative (n=6) data from existing projects.
• Synthesized findings and validated with a reference group.

Main Results:

• High physical support needs were prevalent, including home modifications and assistive technology.
• Many individuals required over 8 hours of daily paid support.
• Individualized housing promoted independence and community reintegration, though gaps in support provision were identified.

Conclusions:

• People with MS necessitate proactive and responsive funding, housing design, and support services.
• Findings will guide a co-designed intervention involving people with lived experience.
• The intervention aims to influence policy and enhance home and living outcomes for the MS population.