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The HEALthy Brain and Child Development Study (HBCD) experience: Recruiting and retaining diverse families in a
Brenda Jones Harden1, Lorraine M McKelvey1, Julie A Poehlmann1
1University of Maryland, 3942 Campus Drive, Suite 3304, College Park, MD 20742, United States.
Insights
The HEALthy Brain and Child Development (HBCD) Study uses tailored strategies to recruit and retain diverse families, including marginalized groups, in developmental research. This approach aims to build trust and ensure inclusive participation for better scientific outcomes.
Area of Science:
- Neuroscience
- Developmental Psychology
- Public Health
Background:
- Recruiting and retaining diverse participants, especially marginalized and underserved populations, is crucial for developmental research.
- Historical inequities and participant risks (e.g., substance use) present significant challenges in social science and neuroscience studies.
- The HEALthy Brain and Child Development (HBCD) Study aims to understand child development from prenatal stages through early childhood.
Purpose of the Study:
- To explore and present strategies for recruiting and retaining diverse participants in the HBCD Study.
- To address challenges in engaging marginalized, underserved, and hard-to-reach populations in longitudinal research.
- To enhance representation, inclusiveness, and data quality in developmental neuroscience.
Main Methods:
- Developing strategies focused on building trust and fostering relationships with families.
- Implementing methods for sustained participant engagement throughout the study duration.
- Ensuring adequate compensation and support systems for participants.
- Adapting study materials and procedures for accessibility and cultural sensitivity.
- Engaging with communities to foster collaboration and understanding.
Main Results:
- The HBCD Study has developed a multi-faceted approach to participant recruitment and retention.
- Strategies emphasize relationship-building, consistent communication, and participant support.
- Consideration of participant needs, including compensation and accessible study materials, is integral.
- Community engagement is a key component for successful participation.
Conclusions:
- The implemented strategies are designed to increase the representation and inclusiveness of participants in the HBCD Study.
- These methods aim to overcome historical barriers and current challenges in research participation.
- Successful recruitment and retention of diverse families will enhance the quality and generalizability of developmental research findings.
Abstract:
The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Given its aim to examine the impact of adversity and protective factors on children's outcomes, the recruitment and retention of families who have a wide diversity in experiences are essential. However, the unfortunate history of inequitable treatment of underrepresented families in research and the risks with which some participants will contend (e.g., substance use) makes their recruitment and retention in social science and neuroscience research particularly challenging. This article explores strategies that the HBCD Study has developed to recruit and retain participants, including marginalized, underserved, and hard-to-reach populations, capitalizing on the extant literature and the researchers' own experiences. In this paper, we address strategies to recruit and retain families within HBCD, including: 1) creating experiences that engender trust and promote relationships; 2) maintaining connections with participants over time; 3) ensuring appropriate compensation and supports; 4) considerations for study materials and procedures; and 5) community engagement. The implementation of these strategies may increase representation and inclusiveness, as well as improve the quality of the resulting data.
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