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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Updated: Jun 17, 2025

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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial.

Joan M Griffin1, Jay N Mandrekar2, Catherine E Vanderboom3

  • 1Kern Center for the Science of Health Care Delivery Research (J.M.G., C.E.V., A.M.D., D.E.H.), Mayo Clinic, Rochester, Minnesota, USA; Division of Health Care Delivery Research (J.M.G.), Mayo Clinic, Rochester, Minnesota, USA.

Journal of Pain and Symptom Management
|August 7, 2024
PubMed
Summary

This study found that video visits improved quality of life for palliative care patients and their family caregivers. The intervention also significantly reduced caregiver depression during care transitions.

Keywords:
Family caregivingdepressionpalliative carequality of liferandomized controlled trialtransitional care

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Area of Science:

  • Palliative Care
  • Gerontology
  • Health Services Research

Background:

  • Family caregivers of patients receiving inpatient palliative care experience significant uncertainties during hospital transitions.
  • Caregivers often lack adequate support and training, impacting their well-being and potentially patient care.
  • Rural and underserved populations face unique challenges in accessing consistent palliative care support.

Purpose of the Study:

  • To evaluate an eight-week video visit intervention for caregivers of palliative care patients transitioning from hospital to home.
  • To assess the impact of nurse-led video interventions on caregiver outcomes (depression, burden, quality of life) and patient quality of life.

Main Methods:

  • A randomized controlled trial (2018-2022) involving adult caregivers in rural/underserved areas.
  • Intervention group received nurse-led teaching, guidance, and counseling via video visits.
  • Control group received standard monthly phone calls; outcomes measured at baseline and eight weeks.

Main Results:

  • The intervention group demonstrated statistically significant improvements in caregiver and patient quality of life compared to the control group.
  • Adjusted analyses confirmed sustained quality of life improvements and a significant reduction in caregiver depression.
  • No significant differences were observed in caregiver burden between the groups.

Conclusions:

  • Targeted interventions addressing the needs of rural caregivers during care transitions are crucial.
  • Video visit interventions can effectively enhance caregiver well-being and improve patient quality of life in palliative care settings.
  • Supporting family caregivers is integral to successful palliative care delivery and patient outcomes.