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Related Concept Videos

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Community Based Intervention01:30

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Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
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Ethical Dilemmas I01:17

Ethical Dilemmas I

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Ethical dilemmas in nursing are of utmost importance, as they often arise from the tension between adhering to core ethical principles and the practical realities of healthcare delivery. These dilemmas require nurses to navigate complex situations where competing ethical considerations pull them in different directions.
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
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Autism Spectrum Disorder01:19

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Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
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Modeling in Therapy01:26

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Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
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Ethical Dilemmas II01:30

Ethical Dilemmas II

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Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
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  3. Research Ethics For All: Development Of A Social-behavioral Research Ethics Education Program For Community Research Partners With Developmental Disabilities.
  1. Home
  3. Research Ethics For All: Development Of A Social-behavioral Research Ethics Education Program For Community Research Partners With Developmental Disabilities.

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Research ethics for all: Development of a social-behavioral research ethics education program for community research

Ariel E Schwartz1, Katherine McDonald2,

  • 1Institute on Disability, University of New Hampshire, 10 West Edge, Durham, NH, 03824, USA.

Disability and Health Journal
|August 14, 2024

View abstract on PubMed

Summary
This summary is machine-generated.
Keywords:
AccessibilityCommunity-based participatory researchEthicsInclusive researchIntellectual and developmental disability

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This study created an accessible research ethics training for community research partners with developmental disabilities. The "Research Ethics for All" program aims to remove barriers and enable broader participation in research.

Area of Science:

  • Disability Studies
  • Research Ethics
  • Health Equity

Background:

  • Inaccessible research ethics training hinders individuals with developmental disabilities from contributing to research.
  • Addressing these barriers is crucial for inclusive research practices.

Purpose of the Study:

  • To develop an accessible social-behavioral research ethics training program.
  • The training is tailored for community research partners with developmental disabilities.
  • Certification is provided upon completion.

Main Methods:

  • Collaborative development involving people with developmental disabilities, service providers, researchers, and ethics experts.
  • Conducted a rapid scoping review of ethical, legal, and social issues in research with adults with developmental disabilities.
  • Utilized a modified Delphi process for content selection and accessibility guidance.

    • Main Results:

    • Identified 93 potential educational content elements through reviews and partner input.
    • Partners recommended 83 content elements for the final training curriculum.
    • Developed "Research Ethics for All," a 5-unit, freely available training with didactic and active learning components.

    Conclusions:

    • "Research Ethics for All" provides foundational social-behavioral research ethics knowledge.
    • The training is designed to empower community research partners with developmental disabilities.
    • It supports increased engagement in research responsibilities.