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Addressing financial hardship in malignant hematology and hematopoietic cell transplant: a team approach
Salene M W Jones1, Timothy J D Ohlsen2,3, Kristine A Karvonen2,3
1Public Health Sciences Division, Fred Hutchinson Cancer Center, Seattle, WA.
Insights
Financial hardship is common after a hematologic malignancy diagnosis, impacting patient outcomes. A multidisciplinary approach involving care teams, social workers, and policymakers can alleviate this burden, improving survival and quality of life.
Area of Science:
- Oncology
- Hematology
- Health Services Research
Background:
- Financial hardship frequently affects patients diagnosed with hematologic malignancies and their families.
- This financial strain is linked to poorer health outcomes and survival rates.
- Contributing factors include healthcare expenses, elevated living costs, income poverty, and insufficient wealth.
Purpose of the Study:
- To highlight the significant public health issue of financial hardship in hematologic malignancy patients.
- To advocate for a multidisciplinary, team-based strategy to address this challenge.
- To identify roles for various stakeholders in mitigating financial toxicity.
Main Methods:
- Literature review and synthesis of existing knowledge on financial hardship in hematologic malignancy.
- Analysis of the multifaceted nature of financial burden.
- Conceptual framework for a multidisciplinary approach.
Main Results:
- Hematologic malignancy diagnosis and treatment often lead to substantial financial hardship.
- Key contributors include direct medical costs, indirect living expenses, and income loss.
- A collaborative approach is essential for effective intervention.
Conclusions:
- Hematologists and oncologists can help by aligning treatments with patient goals and managing symptoms affecting employment.
- Social workers and financial navigators play a crucial role in screening and connecting patients with resources.
- Policy changes and further research are needed to address systemic issues and prevent financial hardship, ultimately improving patient survival and quality of life.
Abstract:
Financial hardship is a common experience for patients and their families after the diagnosis of a hematologic malignancy and is associated with worse outcomes. Health care costs, increased costs of living, income poverty, and inadequate wealth contribute to financial hardship after the diagnosis and treatment of a hematologic malignancy and/or hematopoietic cell transplant. Given the multidimensional nature of financial hardship, a multidisciplinary team-based approach is needed to address this public health hazard. Hematologists and oncologists may mitigate the impact of financial hardship by matching treatment options with patient goals of care and reducing symptom burden disruptive to employment. Social workers and financial navigators can assist with screening and resource deployment. Policymakers and researchers can identify structural and policy changes to prevent financial hardship. By alleviating this major health care burden from patients, care teams may improve survival and quality of life for patients with hematologic malignancies.
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