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Pharmacovigilance01:19

Pharmacovigilance

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Post-marketing surveillance is a critical component of pharmaceutical regulation, often uncovering unanticipated adverse drug reactions (ADRs) once a drug is widely used over an extended period.
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Drug regulation encompasses the management of drug usage by evaluating its safety and efficacy through assessments conducted by regulatory authorities. Regrettably, the history of drug regulation is marred by several catastrophic events. One such incident is the Elixir Sulfanilamide tragedy, in which the toxic compound diethyl glycol was included in a sweet-tasting medication, leading to numerous fatalities. This event prompted the enactment of the Food, Drug, and Cosmetic Act in 1938. Under...
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Health Literacy01:21

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Health literacy is an individual's or a community's capacity to comprehend, receive, read, and use relevant healthcare information and services. The World Health Organization (WHO, 2018) defines health literacy as the cognitive and social skills that determine the ability of individuals to gain access to, understand, and use information in ways that promote and maintain good health. As a result, the WHO helps individuals manage long-term health concerns, participate in preventative...
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  11. Google Trends-assisted Analysis Of The Readability, Accountability, And Accessibility Of Online Patient Education Materials For The Treatment Of Amd After Us Fda Approval Of Pegcetacoplan

Google Trends-Assisted Analysis of the Readability, Accountability, and Accessibility of Online Patient Education Materials for the Treatment of AMD After US FDA Approval of Pegcetacoplan

Samuel A Cohen1, Arthur Brant1, Nadim Rayess2

  • 1Byers Eye Institute, Stanford University School of Medicine, Stanford, CA, USA.

Journal of Vitreoretinal Diseases
|August 16, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Patient education materials for age-related macular degeneration (AMD) treatment often lack readability and accountability. Public interest in Syfovre and geographic atrophy surged post-FDA approval, highlighting a need for improved patient resources.

Area of Science:

  • Ophthalmology
  • Health Communication
  • Public Health

Background:

  • Online patient education materials are crucial for informing individuals about age-related macular degeneration (AMD) treatment options.
  • Assessing the quality of these materials is essential for effective patient understanding and engagement.
  • Public interest in new treatments like Syfovre has increased following regulatory approval.

Purpose of the Study:

  • To evaluate the readability, accountability, accessibility, and source of online patient education materials for age-related macular degeneration (AMD) treatment.
  • To quantify public interest in Syfovre and geographic atrophy following FDA approval.

Main Methods:

  • Analysis of 100 websites providing AMD treatment information, assessing readability, accountability (JAMA benchmarks), and accessibility.
Keywords:
Syfovreaccessibilityaccountabilitymacular degeneration

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  • Categorization of websites by information source (e.g., private practice, national organizations).
  • Utilizing Google Trends to measure public interest in "Syfovre" and "geographic atrophy" post-FDA approval.

    • Main Results:

    • 22% of analyzed websites were written below the recommended sixth-grade reading level, with a mean grade level of 9.76.
    • Websites averaged only 1.40 out of 4 JAMA accountability metrics, and 67% originated from private practices.
    • A significant increase in public interest for "Syfovre" and "geographic atrophy" was observed after FDA approval (P < .001).

    Conclusions:

    • Online patient education materials for AMD treatment frequently exhibit poor readability and lack accountability and accessibility standards.
    • Materials discussing Syfovre showed higher reading levels and lower accountability, indicating a need for improvement to meet public demand.
    • National organizations provided more accessible content but had lower search visibility, suggesting a need for enhanced discoverability strategies.
    online
    patient education
    readability