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Mapping the evidence on dementia care pathways - A scoping review
Marianne Saragosa1, Evan MacEachern2, Mary Chiu3,4
1Science of Care Institute, Lunenfeld-Tanenbaum Research Institute, Sinai Health, Toronto, ON, M4M 2B5, Canada. Marianne.Saragosa@sinaihealth.ca.
Dementia care pathways aid clinicians but need better integration and patient input. Future development should involve people with dementia and their care partners for improved outcomes.
Area of Science:
- Gerontology
- Healthcare Management
- Clinical Practice Guidelines
Background:
- Clinical care pathways standardize practice and enhance patient safety.
- Existing dementia care pathways lack standardization and data on user experiences and outcomes.
- Review objectives focused on pathway purpose, deployment, users, components, outcomes, and stakeholder involvement.
Purpose of the Study:
- Identify dementia care pathway purpose, deployment methods, and user types.
- Determine core components, expected outcomes, and implications for individuals with dementia and their care partners.
- Assess the involvement of persons with dementia and care partners in pathway development, implementation, and evaluation.
Main Methods:
- Systematic literature search of six databases.
- Inclusion of English-language publications.
- Utilized Arskey and O'Malley's scoping review framework in September 2023.
Main Results:
- Thirteen dementia care pathways were analyzed.
- Pathways primarily supported clinician-focused dementia diagnostic and management practices.
- Emphasis was on assessment and post-diagnostic support, with limited focus on community-integrated care.
Conclusions:
- Future dementia care pathway development should involve persons with dementia and care partners.
- Co-design and co-evaluation are crucial for relevance and effectiveness.
- Outcome measures must reflect the lived experiences and needs of individuals with dementia and their care partners.
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