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Exploring Environmental Considerations for Terminally Ill Pediatric Patients in Palliative Care Inpatient Units: A
Sara Nourmusavi Nasab1, Rebecca McLaughlan1, Chris L Smith1
1School of Architecture, Design and Planning, The University of Sydney, Sydney, Australia.
The built environment significantly impacts pediatric palliative care. Key factors include play areas, patient rooms, family spaces, and green areas, crucial for improving end-of-life experiences for children and adolescents.
Area of Science:
- Pediatric Palliative Care
- Environmental Psychology
- Healthcare Architecture
Background:
- End-of-life care environments significantly influence patient experience.
- Most research focuses on adult palliative care environments, neglecting unique pediatric needs.
- Built environmental factors are crucial in pediatric palliative care settings.
Purpose of the Study:
- To explore the impact of the built environment on pediatric end-of-life patients in inpatient palliative care units.
- To identify key environmental considerations for children and adolescents receiving palliative care.
Main Methods:
- Conducted a narrative review with a comprehensive search of four databases (PubMed, MEDLINE, PsycINFO, CINAHL).
- Screened titles and abstracts, followed by full-text review of eligible studies.
- Utilized thematic analysis with NVIVO software for data synthesis.
Main Results:
- Identified 22 studies meeting inclusion criteria.
- Revealed four key themes: activities/play environments, patient accommodation, family support spaces, and outdoor/green spaces.
- Highlighted the importance of these elements in pediatric palliative care settings.
Conclusions:
- Limited research exists on architectural aspects, with a reliance on family and staff perspectives.
- Future research should prioritize pediatric and adolescent patient perspectives.
- Enhancing environmental design is crucial for meeting the unique needs of pediatric palliative care patients and their families.
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