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Evaluating decision regret after extremely preterm birth.

Laura Belden1, Joseph Kaempf2, Amy Mackley3

  • 1ChristianaCare, Newark, Delaware, USA beldenl1@chop.edu.

Archives of Disease in Childhood. Fetal and Neonatal Edition
|August 20, 2024
PubMed
Summary

Decision regret after extremely premature birth is common. Factors like prenatal consultation, active care decisions, and infant survival are associated with lower regret.

Keywords:
Intensive Care Units, NeonatalNeonatologyResuscitation

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Area of Science:

  • Perinatal medicine
  • Maternal-fetal medicine
  • Neonatology

Background:

  • Decision regret following extremely premature birth is not well understood.
  • This study investigates factors influencing decision regret in mothers of extremely premature infants.

Purpose of the Study:

  • To assess decision regret in women who delivered extremely premature infants (22-25 weeks gestation).
  • To compare decision regret scores based on resuscitation decisions (active care vs. comfort care).

Main Methods:

  • Electronic surveys using a validated decision regret tool administered to mothers.
  • Data collected from two hospitals between 2004-2019.
  • Comparison of decision regret scores across different care groups and decision-making roles.

Main Results:

  • Decision regret was elevated across all care groups.
  • Lower decision regret was observed in the 'active care' group compared to 'comfort care' (14 vs. 39).
  • Factors associated with lower regret included prenatal consultation, primary decision-maker role, and infant survival.

Conclusions:

  • Decision regret is a significant concern for parents of extremely premature infants.
  • Empowering parents through prenatal consultation and shared decision-making may reduce regret.
  • Positive infant outcomes are linked to lower parental decision regret.