Neurologists' Attitudes and Perceptions on Palliative Care: A Qualitative Study

Area of Science:

• Neurology
• Palliative Care
• Health Systems Research

Background:

• Neurologic disorders necessitate complex care and advanced care planning.
• Neurologists play a key role in patient-centered care, understanding disease trajectories and patient values.
• Little is known about neurologists' perspectives on care planning and palliative care.

Purpose of the Study:

• To explore neurologists' perceptions and challenges regarding care planning and palliative care.
• To develop a theory explaining neurologists' attitudes towards palliative care.

Main Methods:

• Semistructured interviews with 10 neurologists from a Canadian academic institution.
• Constant comparative method with constructivist grounded theory analysis.
• Member checking was conducted post-interview.

Main Results:

• Delayed care planning and palliative care result from patient, physician, and resource factors.
• Contextual factors (visit type, setting, clinic culture) influence these discussions.
• Opportunities for improvement include education, collaboration with palliative care specialists, and health system support.

Conclusions:

• Failure or delay in initiating care planning and palliative care stems from a complex interplay of factors.
• Enhanced educational opportunities, integrated practices, and health system support are crucial.
• Addressing misconceptions about palliative care and resource availability is essential.