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Communications, engagement, and dissemination strategies for the HEALthy Brain and Child Development (HBCD) Study
Katherine M Cole1, Chloe J Jordan1, Micaela Parkinson2
1National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA.
Insights
The HEALthy Brain and Child Development (HBCD) Study is a longitudinal research project tracking child development from pregnancy through early childhood. Its Communications, Engagement, and Dissemination (CED) Committee focuses on inclusive recruitment and sharing findings with the public.
Area of Science:
- Neuroscience
- Developmental Psychology
- Public Health
Background:
- The HEALthy Brain and Child Development (HBCD) Study is a multi-site, prospective, longitudinal cohort study.
- It aims to examine human brain development, cognitive, behavioral, social, and emotional development from prenatal stages through early childhood.
- Success relies on engaging diverse populations, including those at high and low risk for prenatal substance use.
Purpose of the Study:
- To develop and implement a strategy for study awareness, participant recruitment, and engagement of families, partners, and collaborators.
- To create inclusive recruitment materials that reduce stigma for marginalized populations, including individuals with substance use and mental health conditions.
- To disseminate scientific findings to participants, families, and the public.
Main Methods:
- Utilizing an integrated product development workflow and early partner engagement to address recruitment challenges.
- Developing versatile recruitment and awareness materials with consistent, inclusive messaging.
- Expanding outreach via newsletters and social media, prioritizing participant privacy.
Main Results:
- Developed versatile recruitment and awareness materials with inclusive messaging to reduce stigma.
- Established an integrated workflow and engaged partners to address challenges.
- Initiated outreach expansion through newsletters and social media.
Conclusions:
- Effective communication and engagement strategies are crucial for the success of large-scale developmental studies.
- Inclusive messaging and targeted outreach are essential for recruiting diverse populations.
- Ongoing dissemination efforts will inform the public about HBCD Study discoveries.
Abstract:
The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.
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