The Ouest Data Hub: An Interregional Health Data Sharing Ecosystem for Research

Area of Science:

• Health Informatics
• Medical Research Infrastructure
• Data Science in Healthcare

Background:

• The Ouest Data Hub (ODH) is a GCS HUGO initiative involving University Hospitals in the French Grand Ouest region.
• It aims to advance health data sharing and reuse for real-world health data-driven research.
• Clinical Data Warehouses (CDWs) and Clinical Data Centers (CDCs) are central to its structure, enabling analytics and forming an interregional Learning Health System.

Purpose of the Study:

• To establish a collaborative, multi-institutional model for health data sharing and reuse.
• To foster innovation and research using real-world health data.
• To demonstrate the ODH's capacity for monocentric and multicentric research.

Main Methods:

• Utilizing a collaborative and multi-institutional model.
• Implementing Clinical Data Warehouses (CDWs) and Clinical Data Centers (CDCs).
• Facilitating access to extensive health data, ensuring clinical relevance through healthcare professional integration.

Main Results:

• In 2023, facilitated access to health data from over 9.3 million patient records.
• Demonstrated capacity for monocentric and multicentric research across various clinical fields.
• Highlighted the importance of data quality, interoperability, harmonization, and standard adherence.

Conclusions:

• The ODH represents a scalable model for health data ecosystems, promoting research and innovation.
• Ongoing efforts in data quality and interoperability are critical for its success.
• The ODH model has the potential to serve as a foundation for national and supranational data sharing initiatives.