Proposal for a Patient Centered Health Information Framework for Clinical and Personal Data Movement.

Area of Science:

• Health Informatics
• Digital Health
• Patient Empowerment

Background:

• Continuity of care is challenged by fragmented patient health data.
• Discharge letters are crucial summaries of hospital stays but lack standardized patient-accessible management.
• Cross-border healthcare necessitates secure and portable patient health information.

Purpose of the Study:

• To propose a Patient-Centered Information Framework (PCIF) for individual health data management.
• To enable patients to utilize discharge letters for comprehensive health record tracking.
• To facilitate secure, cross-border sharing of patient health information.

Main Methods:

• Development of the Patient-Centered Information Framework (PCIF) concept.
• Analysis of discharge letter regulations across multiple countries.
• Proposal of a management protocol for a standardized patient discharge letter framework within PCIF.

Main Results:

• A defined framework (PCIF) empowering patients to control their health data.
• Demonstration of discharge letters as a tool for patient-led data management.
• Exploration of cross-border data management solutions for patient mobility.

Conclusions:

• The PCIF offers a viable solution for patient-controlled health data.
• Standardized discharge letters within a PCIF can enhance healthcare continuity and data protection.
• The proposed framework supports seamless health information exchange across borders.