Sustainability in Secondary Use of Health Data - A Scoping Review

This scoping review investigates sustainability in the reuse of health data on a technological, intra-organizational, inter-organizational, and regulatory level. Thereby, it focuses on the evolutionary, relational, and durational perspective of sustainability. The study highlights various challenges in achieving data sustainability, from regulatory norms such as FAIR principles towards data governance processes and responsibilities in organizations that facilitate data sharing. By highlighting the need for economic sustainability of health data sharing platforms and adapted principles for data sharing, this study aims to analyze current practices that aim for sustainability in the secondary use of health data.