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"It Attracts Your Eyes and Brain": Refining Visualizations for Shared Decision-Making with Heart Failure Patients
Sabrina Mangal1, Maryam Hyder2,3, Kate Zarzuela2,3
1Department of Biobehavioral Nursing and Health Informatics, University of Washington School of Nursing, Seattle, Washington, United States.
Applied Clinical Informatics
|August 23, 2024
Summary
N-of-1 trials help patients understand personal health data. A new visualization tool uses clear symptom scores and qualitative language to improve shared decision-making for medication N-of-1 trials.
Area of Science:
- Personalized medicine
- Patient-centered care
- Health informatics
Background:
- N-of-1 trials offer personalized treatment comparisons using individual patient data.
- Optimal presentation of medication N-of-1 trial data for patient decision-making remains understudied.
Purpose of the Study:
- To optimize a patient-facing data visualization tool for medication N-of-1 trials.
- To enhance patient understanding of individual health information and facilitate shared decision-making.
Main Methods:
- Qualitative interviews with 9 heart failure patients undergoing N-of-1 trials.
- Iterative refinement of a data visualization tool prototype based on participant feedback.
- Directed content analysis of interview data to identify key themes.
Main Results:
- Patients preferred clearly stated individual symptom scores.
- A reference image with labels improved data interpretation.
- Qualitative language (e.g., 'better,' 'worse') was preferred over numerical data alone.
Conclusions:
- Patient feedback successfully informed the design of a data visualization tool for medication N-of-1 trials.
- Further usability and comprehension testing of the tool is recommended.
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