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Understanding Co-Creation in a Research Partnership Programme Exploring Patient-Driven Innovations: A Qualitative

Hanna Jansson1, Jamie L Luckhaus1, Henna Hasson1,2

  • 1Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|August 30, 2024
PubMed
Summary
This summary is machine-generated.

This study explored how patient innovators and researchers understand co-creation in research partnerships. Four distinct understandings emerged, highlighting the importance of inputs, process, and outputs for successful patient innovation and research relevance.

Keywords:
co‐creationco‐productionpartnership researchpatient and public involvementpatient authorpatient‐driven innovation

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Area of Science:

  • Patient and Public Involvement in Research
  • Health Services Research
  • Qualitative Research Methods

Background:

  • Successful co-creation in research hinges on a shared understanding, yet practical applications reveal diverse perspectives.
  • This study addresses the variability in how patient innovators and researchers conceptualize and implement co-creation.

Purpose of the Study:

  • To explore the evolving understanding of co-creation among patient innovators and researchers within a partnership research program.
  • To identify the core components and variations in co-creation conceptualizations.

Main Methods:

  • An explorative, longitudinal qualitative study design was employed.
  • Fifty-eight interviews were conducted within the 'Patients in the Driver's Seat' partnership research programme.
  • Reflexive thematic analysis was used to analyze interview data.

Main Results:

  • Four distinct ways of understanding co-creation were identified and conceptualized using an inputs-process-outputs model.
  • Key themes included: combining diverse perspectives (inputs), dynamic and exploratory processes, striving for equity (not equality), and diverse value creation (tangible/intangible outputs).
  • These themes collectively illustrate the varied co-creation understandings among partnership members.

Conclusions:

  • Co-creation is understood through distinct yet complementary perspectives among patient innovators and researchers.
  • The study proposes that co-creation can be viewed as the sum of its essential components: inputs, process, and outputs.
  • Enhanced understanding of co-creation aims to improve research relevance for patients and informal caregivers in patient innovation research.