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Racial, Ethnic, and Language Inequities in Ambulatory Pediatrics Patient Family Experience
Margaret N Jones1, Michael Ponti-Zins2, Melinda MacDougall3
1Division of General and Community Pediatrics (MN Jones, M MacDougall, MC Burkhardt, A Corley, K Copeland, and AF Beck), Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of Pediatrics (MN Jones, S Ehrlich, S Hanke, J Meinzen-Derr, MC Burkhardt, A Corley, J Hackworth, K Copeland, JA Kahn, and AF Beck), University of Cincinnati College of Medicine, Cincinnati, Ohio.
Insights
Patient race, ethnicity, and language impact pediatric patient family experience (PFE) survey results. Asian, Black, Hispanic, and Spanish-speaking patients reported worse experiences, highlighting care inequities.
Area of Science:
- Health Services Research
- Health Equity
- Pediatric Healthcare Outcomes
Background:
- Patient family experience (PFE) is a critical metric in healthcare quality.
- Understanding factors influencing PFE is essential for improving care delivery.
- Previous research has explored various determinants of patient satisfaction, but specific demographic associations require further investigation.
Purpose of the Study:
- To investigate the association between patient demographics (race, ethnicity, primary language) and patient-provider racial congruence with PFE survey responses.
- To identify potential inequities in pediatric ambulatory care experiences based on patient background.
- To inform targeted interventions for improving PFE across diverse patient populations.
Main Methods:
- Cross-sectional analysis of 89,175 PFE surveys from a large urban children's hospital system (June 2020-May 2022).
- Examined associations of patient race, ethnicity, primary language, and patient-provider racial congruence with "top-box" scores on PFE surveys.
- Adjusted for socioeconomic deprivation, patient/encounter characteristics, and care location.
Main Results:
- Lower odds of optimal "top-box" PFE scores were observed for Asian, Black, and Hispanic patients compared to White patients.
- Patients with Spanish as their primary language reported worse experiences than English-primary-language patients.
- Patient-provider racial congruence was associated with higher odds of positive experiences for two of five survey questions.
Conclusions:
- Significant, previously unreported inequities in pediatric ambulatory PFE exist.
- Asian, Black, Hispanic, and Spanish-language patients consistently reported worse healthcare experiences.
- Addressing these disparities is crucial for achieving equitable pediatric care.
Objective:
To determine the association of patient race, patient-provider racial congruence, patient ethnicity, and family primary language with patient family experience (PFE) survey responses.
Methods:
Cross-sectional review of PFE survey responses from all ambulatory medical encounters at a large, urban children's hospital system June 1, 2020-May 31, 2022. Exposures were patient race, patient-provider racial congruence, patient ethnicity, and family primary language. We adjusted analyses for neighborhood-level socioeconomic deprivation, patient sex and age, encounter specialty, and location of care. Outcomes were PFE survey scores for five questions focused on overall experience, respect, and safety; categorized using industry standard metric of presence of a "top-box" score, defined as a nine or 10 for questions on an 11-point scale or as four on a four-point scale.
Results:
We included 89,175 surveys (15.6% response rate). The odds of having optimal, "top-box" responses for several assessed questions were lower for patients identified as Asian (eg, adjusted odds ratio [OR] 0.46; 95% confidence interval [CI] 0.40, 0.52) or Black (eg, OR 0.65; CI 0.60, 0.70) compared to White, and for Hispanic (eg, OR 0.84; CI 0.72, 0.97) compared to non-Hispanic. Similarly, the odds of having "top-box" scores were lower for Spanish-primary-language (eg, OR 0.38; CI 0.30, 0.48) compared to English-primary-language patients. Patient-provider racial congruence had higher odds of "top-box" responses for two of five assessed questions (eg, OR 1.18; CI 1.04, 1.35).
Conclusions:
We found previously unreported inequities in ambulatory pediatric PFE outcomes, with worse experiences reported by Asian, Black, Hispanic, and Spanish-language patients.
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