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  11. The Magnitude Of Care Burden And Associated Factors In Caregivers Of Children With Cancer At The Country's Largest Tertiary Referral Hospital, Ethiopia: A Cross-sectional Study

The Magnitude of Care Burden and Associated Factors in Caregivers of Children with Cancer at the Country's Largest Tertiary Referral Hospital, Ethiopia: A Cross-Sectional Study

Gashaw Arega1, Abdulkadir M Said1, Sosina Workineh1

  • 1Addis Ababa University, Addis Ababa, Ethiopia.

Global Pediatric Health
|September 2, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Caregivers of children with cancer experience significant burden, with over half facing moderate to severe challenges. Lack of income and support contribute to this burden, increasing the risk of treatment abandonment.

Area of Science:

  • Oncology
  • Pediatric Oncology
  • Caregiver Support

Background:

  • Childhood cancer imposes a significant care burden on family caregivers due to its chronic nature.
  • Caregiver burden impacts the well-being of those supporting children through cancer treatment.

Purpose of the Study:

  • To determine the level of care burden among caregivers of children with cancer.
  • To identify factors associated with increased care burden in this population.

Main Methods:

  • A facility-based, cross-sectional study was conducted at Tikur Anbessa Specialized Hospital.
  • Data from 208 children with cancer and their caregivers were analyzed using descriptive and inferential statistics (SPSS v.25).
  • Factors associated with care burden were assessed using binary logistic regression (P < .05).
Keywords:
Ethiopiacare burden inventory scorecaregiverschildhood cancers

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Main Results:

  • The majority of caregivers were parents (88.9%) with insufficient income (87.5%) for treatment costs.
  • A significant proportion of caregivers (76.4%) spent 19-24 hours daily on care, and 27.4% considered abandoning treatment without support.
  • Moderate (53.4%) and severe (35.1%) care burdens were prevalent. Occupational status, lack of NGO support, and insufficient income were associated with increased burden.

Conclusions:

  • Most caregivers of children with cancer are parents facing financial hardship and substantial care demands.
  • Over a quarter of caregivers expressed intent to abandon treatment, highlighting a critical need for support.
  • Caregiver burden is a significant issue, influenced by socioeconomic factors and support systems.
overall care burden
treatment abandonment