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Supporting siblings during the critical illness hospitalization of a child: learning from experience
Karen Dryden-Palmer1,2, Alexis Shinewald1,3, Kimberly O'Leary3
1Paediatric Intensive Care Unit, The Hospital for Sick Children, Toronto, ON, Canada.
Insights
Childhood critical illness significantly impacts siblings and young family members. Supportive, family-centered care is crucial for improving their hospital experience and overall outcomes.
Area of Science:
- Pediatric Critical Care
- Family Systems Nursing
- Child Psychology
Background:
- Childhood critical illness disrupts family dynamics, routines, and caregiver roles.
- Uncertainty surrounding a critically ill child's well-being significantly affects siblings and other children.
- Hospitalization of a child in critical condition can lead to substantial emotional and practical challenges for the entire family.
Purpose of the Study:
- To describe the potential impacts of a critical illness hospitalization on siblings.
- To outline approaches and interventions for supporting siblings of critically ill children.
- To synthesize current literature and practice experience for family-centered critical care.
Main Methods:
- Conceptual paper utilizing a traditional review and narrative analysis.
- Synthesis of existing literature on childhood critical illness and sibling impact.
- Incorporation of author's practice experience in pediatric critical care.
Main Results:
- Critical illness hospitalizations have diverse impacts on siblings and young family members.
- Consistent, transparent, and supportive family-centered care enhances the sibling experience.
- Evidence-informed interventions can mitigate challenges and improve outcomes for siblings.
Conclusions:
- Childhood critical illness necessitates a family-centered approach to care.
- Supporting siblings during a child's critical illness is essential for positive outcomes.
- Proactive, developmentally appropriate support for siblings improves adaptation and well-being.
Introduction:
Childhood critical illness impacts the entire family of the critically ill patient. Disruptions to usual family rhythms and routines, established relationships, physical relocations or shifts in caregivers, and the uncertainty about the patient's well-being can have significant impacts on siblings and other connected children in the family. Promoting and facilitating family interactions and engaging younger family members in the hospital experience have been shown to reduce patient and family anxiety, enhance family adaptation, and improve child and family outcomes. The critical care team can implement evidence-informed approaches to address and mitigate challenges for families and provide developmentally aligned support to impacted siblings.
Aim:
This conceptual paper describes the potential impacts of a critical illness hospitalization on siblings, approaches to supporting siblings, and practical interventions drawn from a synthesis of the current literature and the author's practice experience caring for critically ill children and their families.
Data Sources:
A traditional review and narrative analysis moderated by the authors and supported by lived experience.
Conclusions:
There is a range of impacts of a critical illness hospitalization on siblings and young family members of the patient. Providing consistent, transparent, and supportive child, sibling, and whole family-centered care can improve the experience and outcomes for the child and family.
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