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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Heart failure (HF) is a progressive syndrome involving ventricles that leads to inadequate cardiac output. It can be classified based on location and output or ejection fraction. Ejection fraction (EF) is an essential measurement in the diagnosis and surveillance of HF. Reduced EF corresponds to systolic heart failure (HFrEF). However, HF with preserved ejection fraction (HFpEF) is becoming increasingly prevalent. Also known as diastolic HF, this form of HF is related to aging. The...
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Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
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Updated: Jun 13, 2025

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Identifying Palliative Care Needs in Patients With Heart Failure Using Patient Reported Outcomes.

Camilla Lykke1, Birgit Jurlander2, Ola Ekholm3

  • 1Department of Oncology and Palliative Care (C.L, G.I.J, S.L, L.V.H), North Zealand Hospital, Hillerød, Denmark; Section of Palliative Medicine (C.L, P.S, G.P.K, I.E, A-D.Z), Department of Oncology, Rigshospitalet Copenhagen University Hospital, Copenhagen, Denmark.

Journal of Pain and Symptom Management
|September 13, 2024
PubMed
Summary
This summary is machine-generated.

Heart failure patients experience significant symptom burden and require palliative care. Women, older individuals, and those with severe disease face the greatest challenges, highlighting the need for systematic assessment and interventions.

Keywords:
General healthheart failurepalliative carepatient reported outcomes measuresquality of lifesymptoms

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Area of Science:

  • Cardiology
  • Palliative Care
  • Symptom Management

Background:

  • Heart failure (HF) is a complex condition with substantial symptom burden and mortality.
  • Effective management requires understanding patient-reported symptoms and palliative care needs.

Purpose of the Study:

  • To describe the symptom burden in heart failure (HF) patients.
  • To identify palliative care needs in HF patients.
  • To analyze symptom burden in relation to sex, age, and New York Heart Association (NYHA) functional classification.

Main Methods:

  • Cross-sectional questionnaire survey of adult HF patients (NYHA II, III, IV).
  • Assessment of palliative care needs using validated patient-reported outcome measures (PROMs).
  • Recruitment from the Department of Cardiology, North Zealand Hospital, Denmark.

Main Results:

  • 314 patients completed the survey; mean age 74 years.
  • 53% rated their health as fair or poor; 67% of NYHA III/IV patients had ≥4 severe palliative symptoms.
  • Women, older patients, and those with NYHA III/IV classification reported worse quality of life, functional capacity, and higher symptom burden.

Conclusions:

  • HF patients exhibit a high symptom prevalence, indicating significant palliative care needs.
  • Women, older patients, and those with advanced HF experience the greatest symptom burden.
  • PROMs and systematic assessment are crucial for integrating symptom-modifying and palliative care interventions in cardiology.