Transitions: Living With Young-Onset Alzheimer's Disease: A Qualitative Interview Study

Area of Science:

• Neuroscience
• Gerontology
• Psychology

Background:

• Young-onset dementia (YOD) affects individuals under 65, presenting distinct challenges compared to later-onset forms.
• The neurodegenerative nature of YOD necessitates adaptation and coping strategies for patients and their families.
• Understanding the lived experiences of those with YOD is vital for developing effective support systems.

Purpose of the Study:

• To explore the experiences of individuals diagnosed with Alzheimer's disease (AD) causing YOD.
• To identify the transition processes and coping mechanisms employed during the first year post-diagnosis.
• To understand the impact of YOD on life perspective and well-being.

Main Methods:

• Qualitative interview study involving 13 participants diagnosed with YOD due to AD, under 65 years old.
• Interviews conducted one year after diagnosis and analyzed using qualitative content analysis.
• Meleis's transitions theory applied as a theoretical framework for deeper understanding.

Main Results:

• Participants described significant life changes, including symptom progression, loss of meaningful activities, and increased social isolation.
• Feelings of disconnection arose from uncertainty about the future.
• Awareness, coping strategies, and social support were identified as key factors in managing YOD and progressing through transitions.

Conclusions:

• Preventing social isolation is critical for facilitating healthy transitions in individuals with YOD.
• Healthcare professionals must recognize early signs of transition and the complexity of coping with YOD.
• Proactive identification and support can help mitigate negative responses to change and promote well-being.