Designing a resilience-based intervention program for children with cancer and their families: a study protocol

Area of Science:

• Pediatric Oncology
• Health Services Research
• Family Psychology

Background:

• Pediatric cancer survival rates have improved, but long-term side effects pose challenges.
• Children in remote Canadian communities face limited access to specialized oncology resources.
• This study addresses the need for accessible, family-centered care in underserved areas.

Purpose of the Study:

• To introduce an interdisciplinary clinical intervention program for pediatric oncology patients and families.
• To improve well-being across the cancer trajectory, focusing on remote communities.
• To empower families through enhanced support and self-management strategies.

Main Methods:

• Utilized an intervention mapping approach with collaborative input from patients, families, professionals, and researchers.
• Identified vulnerability factors and developed a logic model for program change.
• Employed a mixed-methods approach to evaluate program effectiveness, tailoring strategies to remote contexts.

Main Results:

• Anticipated outcomes include family empowerment with self-management tools and professional support.
• The program aims to mitigate biopsychosocial and spiritual complications.
• Improved overall health and well-being are expected during treatment and survivorship phases.

Conclusions:

• This initiative shifts pediatric oncology care towards a holistic, family-centered approach for remote communities.
• Accessible interventions are crucial for addressing immediate and long-term challenges in underserved populations.
• The program emphasizes resilience, professional support, and family empowerment to elevate care standards.