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Published on: June 13, 2016
Nursing education strategy for caregivers of children and adolescents with epilepsy
Sandra Milena Campiño-Valderrama1, Paula Andrea Duque1, Yeison Alberto Garcés-Gómez2
1Faculty of Health Sciences - Universidad Católica de Manizales, Colombia.
Insights
Caregiver education significantly improves knowledge and first aid skills for children with epilepsy. Educational programs enhance the quality of life for both children with epilepsy and their families.
Area of Science:
- Pediatric Neurology
- Healthcare Education
- Caregiver Support
Background:
- Epilepsy significantly impacts children's quality of life and necessitates robust healthcare.
- Caregiver knowledge is crucial for effective epilepsy management and patient well-being.
Purpose of the Study:
- To evaluate the effectiveness of an educational intervention for caregivers of children and adolescents with epilepsy.
Main Methods:
- A cross-sectional study involving 140 pediatric patients with epilepsy and their caregivers in Colombia.
- Initial nursing consultations assessed demographics and epilepsy knowledge.
- A structured educational program was delivered, followed by a 60-day evaluation of caregiver learning.
Main Results:
- The study included a diverse caregiver population, with 70% being female and varying educational backgrounds.
- Caregivers demonstrated a baseline understanding of epilepsy, with most scoring above 50% in initial assessments.
- Post-intervention, caregivers showed improved learning and reported enhanced first aid knowledge.
Conclusions:
- Tailored educational programs are vital for improving epilepsy care.
- Promoting comprehensive care plans enhances the living conditions for patients with epilepsy and their caregivers.
Abstract:
Epilepsy is a disease that commonly manifests in childhood and can significantly affect the quality of life for both sufferers and their families. As such, it necessitates comprehensive and high-quality healthcare.
Objective:
To assess the impact of an educational intervention targeted to caregivers of children and adolescents with epilepsy.
Materials And Methods:
A cross-sectional study conducted between February and November 2022, involving 140 patients and their primary caregivers who intentionally sought medical consultation at a pediatric hospital in Caldas, Colombia. Initial nursing consultations were conducted to identify clinical and demographic characteristics and to assess knowledge about the disease, its management, and care. Subsequently, a comprehensive educational process was implemented using various educational aids. After 60 days, feedback was provided to evaluate the caregivers' learning.
Results:
Focal epilepsy, generalized epilepsy and idiopathic focal epilepsy predominated in the medical diagnoses. The etiology highlighted genetic cause and structural 70% of caregivers were female. Caregivers' schooling: 10% of caregivers did not have schooling, 28% had primary education, 46% had secondary education, 16% had postgraduate education. Caregivers demonstrated knowledge about epilepsy and its management, with the majority scoring above 50%. The posttest indicated improvement in learning processes, and caregivers expressed that it benefited them in learning first aid.
Conclusion:
Establishing educational programs tailored to the needs of individuals and promoting care plans are essential for improving the living conditions of patients with epilepsy and their caregivers.
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