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In-Home Remote Assessment of the MDS-UPDRS Part III: Multi-Cultural Development and Validation of a Guide for
Michelle H S Tosin1,2, Alvaro Sanchez-Ferro3, Ruey-Meei Wu4
1Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA.
Movement Disorders Clinical Practice
|September 23, 2024
Summary
A new patient guide enables accurate remote assessment of Parkinson's disease (PD) motor symptoms using the Movement Disorder Society Unified Parkinson's Disease Rating Scale (MDS-UPDRS) part III via video. This tool supports telemedicine in PD care.
Area of Science:
- Neurology
- Telemedicine
- Digital Health
Background:
- Virtualized care presents challenges in assessing Parkinson's disease (PD) motor severity.
- The Movement Disorder Society Unified Parkinson's Disease Rating Scale (MDS-UPDRS) part III is widely used but lacks validation for remote use.
Purpose of the Study:
- To validate a patient guide for accurate, remote, video-based MDS-UPDRS part III examinations.
- To assess the usability of a novel guide for synchronous remote PD assessment.
Main Methods:
- A multi-stage mixed-methods study was conducted.
- Included team consensus, cognitive pretesting, and usability testing (System Usability Scale [SUS]) across five international sites.
- 25 participants with distinct linguistic and cultural backgrounds were involved.
Main Results:
- A multi-language, pictograph-heavy guide for remote MDS-UPDRS part III examination was developed.
- The guide achieved benchmark usability scores (SUS ≥ 68) in participants.
- Successful synchronous remote assessment was completed by all 25 participants.
Conclusions:
- The developed guide is usable and accurate for remote MDS-UPDRS part III examinations.
- This tool can facilitate clinical practice and research in telemedicine for Parkinson's disease.
- It supports the paradigm of virtual care for PD patients.
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