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Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
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Promoting the Secondary Use of Clinical Research Data in Australia
Hugo Leroux1, Kathy Dallest2, Kristan Kang3
1The Australian e-Health Research Centre, CSIRO, Queensland 4029, Australia.
Studies in Health Technology and Informatics
|September 25, 2024
Summary
Australia
Area of Science:
- Health research infrastructure
- Data sharing and accessibility
- Clinical trial data management
Background:
- The Australian research community is developing a national health data infrastructure.
- This initiative aims to improve access to and sharing of health study data.
- It involves a federation of nine nodes representing 72 health research organizations.
Purpose of the Study:
- To describe the development of a national health data infrastructure in Australia.
- To highlight the promotion of FAIR data principles in clinical trial data management.
- To outline the coordination efforts across multiple research organizations.
Main Methods:
- Establishing systems, processes, and relationships for data sharing.
- Coordinating efforts through a federation of nine nodes.
- Implementing FAIR (Findable, Accessible, Interoperable, Reusable) data approaches.
Main Results:
- A coordinated national infrastructure for health data is being built.
- FAIR data principles are being promoted for clinical trial data.
- Collaboration is established across 72 health research organizations.
Conclusions:
- The initiative facilitates improved access to and sharing of health research data.
- The federated model supports the implementation of FAIR data practices.
- This infrastructure is crucial for advancing health research in Australia.
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