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Autism Spectrum Disorder01:19

Autism Spectrum Disorder

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Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
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Analyzing Community-Based Support Requests Made by Black Families Raising Autistic Children.

Jamie N Pearson1, DeVoshia L Mason Martin2, Jared H Stewart-Ginsburg2

  • 1North Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA. jnpearso@ncsu.edu.

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Black families raising autistic children most frequently seek family, school, and behavioral support from community organizations. Demographics like rurality, gender, and age influence these autism support needs.

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Area of Science:

  • Autism Spectrum Disorder (ASD) research
  • Community-based support systems
  • Health equity in autism services

Background:

  • Black families face unique barriers in accessing autism support.
  • Community organizations can bridge gaps caused by systemic inequities.
  • Understanding specific support needs of Black families is crucial.

Purpose of the Study:

  • To explore the autism-related support needs of Black families raising autistic children.
  • To analyze communication patterns within a community autism organization.
  • To determine how familial demographics influence support needs.

Main Methods:

  • Analysis of 1,460 communication entries from a community autism organization.
  • Examined frequency of support request types.
  • Investigated relationships between requests and familial demographics (rurality, gender, age).

Main Results:

  • Most requested supports: family/individual, school-related, and behavioral.
  • Less frequent requests: bullying, social services, health insurance.
  • Significant interactions found between top support types and demographics.

Conclusions:

  • Community organizations can tailor services to better support Black families.
  • Addressing demographic variations is key to equitable autism support.
  • Findings inform strategies for inclusive autism service provision.