Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care
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View abstract on PubMed
Summary
This summary is machine-generated.The ASCOT Easy Read (ASCOT-ER) tool was adapted for older adults using social care. Co-production and cognitive interviews improved its accessibility, particularly for those with cognitive impairments.
Area Of Science
- Gerontology
- Social Care Research
- Health Services Research
Background
- The Assessment of Social Care-Related Experiences (ASCOT) is a widely used measure.
- Adapting existing measures for specific populations, such as older adults with cognitive impairments, is crucial for accurate data collection.
- Easy Read formats are intended to improve accessibility, but their effectiveness requires validation.
Purpose Of The Study
- To adapt and assess the content validity of the ASCOT Easy Read (ASCOT-ER) for older people accessing social care.
- To ensure the tool is comprehensible and relevant for individuals with varying cognitive abilities.
- To refine the ASCOT-ER through user feedback and iterative testing.
Main Methods
- A co-production working group of older social care users and supporters was formed.
- The ASCOT-ER's images, wording, and layout were evaluated for comprehensibility and relevance.
- Cognitive interviewing techniques (think aloud) were used with 25 older social care users.
Main Results
- Co-research with people with dementia and their supporters was vital for tool development.
- Iterative adjustments to design, layout, and wording addressed comprehension, recall, judgment, and response issues.
- Illustrations were unexpectedly disliked or disregarded by most users, especially those with dementia, contrary to typical Easy Read assumptions.
Conclusions
- The adapted ASCOT-ER is suitable for older adults using social care, including those with mild to moderate dementia and cognitive impairment.
- Revisions enhanced comprehension, judgment, and response, reducing issues even for cognitively impaired individuals.
- Some prompting and interview administration may still be necessary for individuals with higher cognitive impairment.
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